Raising expectations with people with autism for true engagement in life and learning.
Saturday, October 22, 2016
The Loving Push by Temple Grandin and Debra A Moore
How on earth did I miss this book when it first came out? One of my wonderful savvy parents brought it to one of our sessions and told me I just had to read it. She thought it would really speak my language. Boy, does it. I salute the authors' ability to discuss and guide parents to be validated in the importance of continual challenges in ways that are manageable AND in the individual's best interest. Frequently, I will have one parent who pushes their teen or young adult over the edge of competency, assuming they're lazy, assuming manipulation or simply that they need a severe kick in the pants. Then I have the other parent, who worries about over-stressing their child and therefore over-compensates, making life easy and comfortable.
This book is a beautiful mix of how important it is to gain connection through empathy while then deliberately challenging with high and continual expectations. This combination can guide your teen or young adult to venture out of their comfort zone and into the rest of their lives.
I highly recommend this book to any parent of a teen or adult with autism. I'm only half way through and will continue to update this page with favorite quotes and words of wisdom from within it's pages.
https://www.amazon.com/Loving-Push-Professionals-Spectrum-Successful/dp/1941765203
"If you want a road to lead you somewhere different you have to change too. If you don't change where you are going, you will continue going where you are headed." -pg 7
"Remember that children or adults with high levels of hopefulness have been through adversity. Hope does not spring from contentment or security. They house of hope is built brick by brick - calamity upon hardship upon mishap upon mistake. With each trial, our children have the opportunity to develop their resilience, skills, flexibility, and adaptability. These trials provide necessary occasions to struggle and grow. And in doing that, they learn how to believe in themselves." pg. 48
Sunday, May 22, 2016
C2U plus Synchrony
C2U® Plus SYNCHRONY
developed by Barbara Avila, M.S.
RDI®
Consider C2U® plus Synchrony as a stand alone intervention that must happen for all children with autism to adequately receive and integrate any of the traditional interventions we have today (e.g., ABA, DIR, RDI, Social Thinking, and more). C2U + Synchrony ensures a child's true joint attention with his or her guide to keep her safe
as she experiences her world around her. Developmentally, she must
feel that security to then explore both independently and with
others. With Synchrony, she learns the beauty of back and forth engagement and connection with others to learn and love. The earlier the better but this can happen starting at any age at any time with any trusted guide.
In autism, children have significant
regulation and sensory issues that make this early connection, learning, and joint attention challenging. Therefore, they resort to their own devices for
regulation (e.g., repetitive actions or verbalizations). A child with
autism will seek familiar and repetitive patterns to attempt to
soothe him/herself. It is our goal with children with autism, to
ensure connection and repetitive engagement from a developmental
standpoint to then redirect them to more meaningful soothing, while
learning and engaging with others.
C2U® with a child with
autism takes significant, purposeful, and artful engagement from the
guide. The purpose of this blog is to guide you to guide a child
(or person of any age) with autism to connect with you and your guidance.
Step 1: Provide the environment
for connection
In order to truly be curious and
receive curiosity from a child (C2U®), a child must trust
his guides to provide manageable environments for him/her to connect
and be guided. The first environment for connection should be quiet
and relaxed with as little additional stimuli as possible. OR when a
child is struggling with overstimulation, confusion, or otherwise
seeming to be feeling “chaotic,” this quiet, calm scenario can be
provided by the guide (e.g., in a busy environment, taking the child
to a quiet part of the room or outside or simply well away from the
offending environment).
•Quiet space
•Decrease clutter, including your
own voice and visual stimulation
•Define the space visually where you are staying together (e.g., a couch or a room)
Step 2: Be calm while sharing the same space
Children with autism can vary moment
to moment probably due to neurological or biological reasons. This
requires us to truly be in a place that we are calm, collected, and
settled in our own bodies. This may mean sitting beside the person or
child with autism and listening to your own heartbeat, your own
breathing. Allow yourself to breath deeply. Not only will this help
you, it will help the child by your modeling breathing and not making
immediate demands on him/her. This allows the child's attention to
shift, his body to calm, and his availability more possible.
•Breathe
•Slow your own body down
•Say nothing
•Sit down
Step 3: Offer engagement “bids”
Children with autism are often used
to people telling them what to do and/or trying to get them to
respond a particular way that is either right or wrong. The
performance anxiety in both scenarios can be high which can decrease
interest and motivation to engage with others. Here is your chance to
offer “bids” for engagement that are non-threatening, not
performance based, simply bids to connect.
•Offer your hand out near the
child
•Touch
•Lean in toward the child (or
away)
•Say the echoed statement back (if
being requested to do so) but in an ever so slightly different way...
slowed down or with a lower or higher pitched voice than you
typically might.
Step 4: Allow time for and
recognize engagement (C2U)
Here is the most beautiful moment of
all. This is where the child responds to your bid for engagement.
Sometimes you have to wait a significant amount of time (offering
your hand out and simply being in the moment for up to a full minute
while you offer). That moment that the child gazes or shifts or
reaches out to you is the most rewarding moment of all.*THIS is C2U®.
Step 5: Establish Synchrony
You know that moment when you are in a conversation with a friend and it is just flowing well? You feel truly connected to the person and the conversation topic. As mentioned in the beginning of
this article, connection with a repetitive pattern is our
goal, just like in a fluid conversation but here we are meaning nonverbal back and forth shared engagement. I like to call this “synchrony.” Synchrony implies that all
are parts are working equally and efficiently to engage in a rhythmic
pattern. This is also called co-regulation in developmental literature. An example of a co-regulated pattern with synchrony is the game of peek-a-boo.
So following your first bid, your second bid should be to
establish this synchrony. If you offer something now that is very
incongruous with the first bid, you are out of synch with the last
action (and the child). If you offer something very closely related,
you can connect and establish synchrony, a rhythm of engagement that
repeats while changing and evolving into completely different
interactions and learning.
Step 6: Keep the Synchrony as you
Redirect
Yet another moment of serious
enjoyment... with the child responds to you and you respond to him in
ever evolving ways and you feel truly connected. This is where so
much of the art of engagement comes in. Your job is to expand and
evolve the engagement while keeping the synchrony AND provide new
experiences for learning and growing. If you have an activity in the
other room that you would like to teach your student or child, this
is the time to share the schedule or visual of the next activity and
start moving physically toward the door with a rhythmic or
synchronized pattern. This may be VERY subtle and your student may
not find it meaningful for you to be too overt in the process. Some
like it (e.g, chanting as you walk)! Many need to have an active and
physical role to remain in synch with you (e.g., a heavy laundry
basket to carry from one room to the other) or holding your hand).
Step 7: Either re-establish C2U®
or start allowing moments of disconnection and reconnection
Depending on the child and level of
engagement you have achieved on a given day, you can have more
moments of allowing the child to have more moments of independence
(using you as a base). Allow these moments of freedom to explore and
engage with materials you are providing, as you are able to join in
momentarily to guide, teach, expand the child's thinking. If you are
NOT able to join, teach, or expand, it is time to re-establish C2U®.
Go to step 1 or 2 and repeat.
Example activities with C2U+Synchrony
1. You sit down, relax, breathe, and then hand your child something for him to shift his attention to you (C2U) and the item, and do whatever he wants with it. You then keep handing him items for him to do whatever he wants with the items (the goal is synchrony).
2. You bring your child to the kitchen telling him you need his help with the dishwasher. You take both of his hands in yours and allow shift of his attention (C2U) then say "hi," then hand him a plate from the dishwasher to put away. You repeat the pattern with dishes to him, periodically checking with bids, gaining moments of C2U just to share how much you like his help, while achieving synchrony in your work together with multiple plates.
3. You go for a walk with your child, stopping just before you walk out the door for a moment of C2U before you walk together in a synchronized manner to be silly, smooth, or simply keeping in step with one another. Periodically, you stop, pause, or slow down to check in (allow the shift of attention to be to you - C2U) and share something you see, hear, touch.
*If
the child is used to simply responding and/or requesting as their
only means for communicating, s/he may respond “robotically,” in
this moment. This is NOT engagement. We are specifically seeking
moments of engagement vs passive responding or compliance.
Sunday, February 7, 2016
Shouldn't we be linking early childhood objectives with long term quality of life and employment!?
I truly believe that our targets for early intervention, early childhood special education, and school age education for children with autism are all wrong.
Today, I am creating a rating scale for some of my wonderful adult clients, for what it takes to be an excellent employee. We all know this stuff....ambitious, hard working, humble, a good communicator, a good team player.
I work with a fabulous program looking to integrate these key attributes into their daily curriculum with and for their young adults who have gotten themselves to adulthood with serious deficits in these departments. I look back on their Individual Education Plans (IEPs here in the United States) and see goals about turn taking in conversation at least 2-3 times. I see goals about following 2-3 step directions verbally and/or visually. I see goals about them greeting peers. And I know that they have been prompted and scripted each step of the way. They are doing these things because someone told them to, not out of personal conviction.
We are seriously underestimating the ability of these little ones to engage, learn dynamically, share their creative minds with others even before they have chance. We assume they need rigorous practice on what... matching shapes? being compliant for the sake of being compliant? following a script for engaging with someone? Seriously?
I sit here imagining these "Great Employee" attributes in Individual Family Service Plans and Individual Education Plans. There would be goals such as "...will take action above and beyond what is expected of him/her for a classmate (e.g., pick something up that a classmate has dropped, brings someone else a cup of water when getting one for himself)" or "....takes pride in his/her own work towards a goal/project/activity versus just the end result," or "....adjusts to new situations and reasonable demands (appropriate to age and sensory needs) with curiosity and drive to learn."
Yes, these seemingly lofty goals are also harder to measure but seriously, folks, I
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